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17 December 2005 @ 12:11 pm
Poll #635698 How do you spend the anniversary of when you got ARDS(or your family member)

How do you spend the anniversary of when you got ARDS(or your family member)

I avoid it
I celebrate because I'm living
I don't do anything special
I surround myself w/ family/friends
I don't remember the date so therefore do nothing
I pay more attention to the day I got out of IP
I lost someone to ARDS and do something in their memory on the day
Current Mood: curiouscurious
06 December 2005 @ 04:10 pm
How are all of you doing this winter? I know the cold makes breathing even more challenging than normal and hope you are all doing okay. Did everyone remember flu shots? I still haven't got mine but will be doing so soon. I've been busy moving the past couple of weeks and it seems I'm behind on everything at this time. It takes a lot of work to be settled in a new place and than trying to settle into a new routine is a whole other story.

I have not been the best at posting in this communtiy and will attempt to make more posts but most likely they will be from my other account my_everday_life

It's amazing how quickly this year has gone! It's almost Christmas already..anyone have any big plans? I hope you all will be able to spend time w/ friends and or family. I think this time of year brings a lot of challenges for some people so make sure you are taking some extra time out for yourself.

Have a good day.
17 October 2005 @ 06:02 pm
How are all of you? Did you have a good weekend? Just trying to get some communication going so posting a very generic entry.
07 October 2005 @ 12:16 am
My last trip to the pulmologist went well a couple of weeks ago. My lung capacity has improved over the years(had ARDS in Jan. 2000). I was stupid and decided to try to pick up smoking for 2 months recently, but I got sick, still am sick(need to go to the doctor since I've been sick since last Thursday) and will never mess w/ smoking again. Why would I do something like that after such a good checkup!? Actually I started before the checkup and starting was do to stress, but that's besides the point. He told me that though I was doing better, I had to still be careful and as usual, he's right and his point was proven w/in a few weeks of my appointment.

Flu shots are available in a lot of areas and if your immune system has been comprised, which ARDS does, go and get one! Also ask your doctor about your pneumonia shot as well. This can be done every 5 years at the most. I had one done 5 years ago and he told me I could wait awhile on getting another one since I'm doing well.

I hate the cold weather and it's upon us. It went from 80 yesterday to the 50's today. Wisconsin is a cruel state *bah* and winter is always harder w/ breathing. I don't drive so walking in the cold and the snow(people need to shovel!) makes life interesting, but if I take my time and don't wait to leave for work until the last minute I do okay usually.

It's after midnight here and I'm jumping from thing to thing...it's been a long day and I'm ready to take my meds and go to bed. I hope you all are doing well and encourage you all to post in here :P That's why it's here.
Current Mood: tiredtired
04 August 2005 @ 06:49 am
I'm not able to go to this, but I have gone to two ARDS walkathons in the past and it was wonderful to contact to people in real life---if you're able to go, I think it would be worth your time :)

Taken from: http://www.medicalnewstoday.com/medicalnews.php?newsid=28519

Organization Fights to Publicize Syndrome that Kills 75,000 Americans Each Year, Acute Respiratory Distress Syndrome (ARDS)
03 Aug 2005

On Saturday, Aug 13, 2005, the ARDS Foundation will host its 3rd annual “March for Miracles” benefit at the Chicago Botanic Garden, 1000 Lake Cook Road, Glencoe, IL.

Events will include a light breakfast before the walk/run, face painting, temporary tattoos, and the camaraderie of those touched by ARDS. Proceeds from the event will be used to promote public awareness, for education and for medical research into Acute Respiratory Distress Syndrome (ARDS). Over the past three years, this event has raised more than $40,000. Registration for this year's march will begin at 7:30 a.m. ardsusa.org/marchformiracles2005.htm

Cost for the event is $15 for an individual and $30 for a family.

Also, beginning at 4 p.m. on Aug. 13, 2005, the ARDS Foundation is hosting their first ARDS Mini-Conference. Speakers include G. R. Scott Budinger, M.D., Michael Moore, M.D., and H. Steven Sadowsky, PT, RRT, MS, CCS, all from Feinberg School of Medicine, Northwestern Memorial Hospital. Also speaking will be ARDS Survivor, Pastor Jack Yonts, who will address issues of prayer, grief and spirituality in relation to ARDS.

ARDS is a life-threatening condition that leads to a dangerous loss in the functioning of the lungs. Although there are more than 60 distressed conditions that can bring on ARDS, the most common are pneumonia, sepsis (an overwhelming infection in the body), aspiration of fumes, food or stomach contents into the lung, and trauma. These conditions cause the body to manufacture substances that may cause inflammation in the lungs. Once inflamed, the alveoli (air sacs) are then unable to perform the normal oxygenation of the blood.

There are approximately 150,000 reported cases of ARDS per year. Yet because ARDS is often linked with other distressed conditions, it is believed that the actual number of cases per year is significantly higher.

ARDS is particularly complicated because no patient enters the hospital with ARDS as their admitting diagnosis. However, almost anyone who is admitted to a hospital is at risk to develop ARDS.

More than 75,000 Americans will die this year from Acute Respiratory Distress Syndrome. ARDS kills more Americans each year than breast cancer and AIDS. Ten years ago, ARDS suddenly changed the life of then 33-year-old attorney, Eileen Rubin Zacharias.

“After I spent four weeks in a coma and eight weeks on a ventilator, I committed myself to increasing awareness about this devastating syndrome,” said Zacharias, ARDS Foundation President. “Over the past five years, we have been working passionately to find ways to raise money that will lead to increased medical knowledge that can be used to fight ARDS. But it is essential to educate the ARDS Community as well, and with this mini-conference, we will be able to bring experts to educate.”

Paula Blonski, who lost her sister, Marybeth, a nurse, at the age of thirty-six, said, “ARDS seriously lacks public awareness, and as a result, ARDS research is severely under funded,” said Blonski, Vice President of the ARDS Foundation. “While the ARDS Foundation has been able to offer their first grant in partnership with the American Thoracic Society, we are dedicated to doing more. " Paula emphasizes, "We can only begin to make a difference by expanding education, awareness and governance initiatives that will empower individuals to promote early diagnoses and successful treatment of ARDS.”

To learn more about ARDS and the ARDS Foundation, please visit http://ardsusa.org or call 1.312.749.7047.

Eileen Zacharias
Current Mood: contentcontent
23 June 2005 @ 07:27 pm
I get yahoo news e-mailed to me by keywords and this one showed up in my e-mail box the other day.

PET scans predict development of lung disease following trauma

Research released at Society of Nuclear Medicine's 52nd Annual Meeting could guide early treatment
TORONTO, Canada--Positron emission tomography (PET) scans can predict who may develop lung disease after trauma, according to findings made public at the Society of Nuclear Medicine's 52nd Annual Meeting June 18–22 in Toronto.
"Acute respiratory distress syndrome (ARDS) may be identifiable prior to its clinical presentation by diffuse lung uptake on FDG (fluorodeoxyglucose) PET scans," said Kathryn A. Morton, M.D., professor of radiology at the University of Utah, Salt Lake City. "This would identify patients who may benefit from aggressive immune modulation therapy," she added.

ARDS is a life-threatening condition in which inflammation of the lungs and accumulation of fluid in the air sacs leads to low blood oxygen levels; it can be caused by any major lung inflammation or injury (pneumonia, septic shock, trauma, aspiration of vomit or chemical inhalation). ARDS usually develops within 24 to 48 hours of an injury or illness, and the duration and intensity of the condition can vary considerably from patient to patient, with the mortality rate ranging from 35–50 percent.

About 15–30 percent of trauma patients develop ARDS, said Morton, who indicated that this "may be caused by an exaggerated immune response leading to systemic inflammation." She added, "Aggressive immune modulation therapy may prevent ARDS if vulnerable patients could be identified in advance. FDG uptake has been reported to occur in areas of inflammation." Morton said the study's results need to be confirmed in a larger series of patients.

PET is a powerful medical imaging modality that noninvasively uses special imaging systems and radioactive tracers to produce pictures of the function and metabolism of the cells in the body. PET scans are performed with an imaging radiopharmaceutical--most commonly FDG (fluorodeoxyglucose)--that can be imaged by a PET scanner. A PET scan provides a picture of the patient's individual physiology including, in this case, the lungs' function.

"The use of a PET scan to predict who may develop severe lung disease after trauma may help guide early therapy," said Bruce R. Line, M.D., a vice chair of SNM's Scientific Program Committee (General Clinical Specialties Track) and professor of radiology and director of the division of nuclear medicine at the University of Maryland, College Park, Md.

"FDG PET May Predict Development of ARDS In Trauma Patients" is written by SNM member Paige B. Clark, M.D., radiology, Wake Forest University, Winston-Salem, N.C.; Preston Miller, M.D., surgery, Wake Forest University, Winston-Salem, N.C.; and SNM member Kathryn A. Morton, M.D., radiology, University of Utah, Salt Lake City, Utah.
Current Mood: okayokay
Eileen from the ARDS foundation(ardsil.com) made an ARDS chat that you don't have to sign up to join which is more conveint than the yahoo one :) I noticed the other day she sent e-mails out for chat times, but you can go in at anytime of course. The link to the chatroom is http://pub44.bravenet.com/chat/show.php/3703888432 . If you want updates about the chat you can sign up for the ARDS newsletter on the ardsil.com site. It also gives updates on what is going on in the ARDS community such as walkathons, people in crisis, survivor stories, ARDS information and so on.

I also added some new color to the journal but feedback is more than welcome. I was thinking of sweet talking one of my friends to create a background for us, but I'm not sure what would look good, so I'm going to pass for the time being.

Have a wonderful day everyone!
13 May 2005 @ 03:04 pm
I realized that I ended up posting this in my own journal, not the community. Sorry.

I posted this on the ARDS yahoo group and am just cross posting:

I haven't got a lot of feedback on how often people want it but the few people that e-mailed me sounded flexible.

I'm in central time so I'm going to go by that. Next week Thursday at 8pm. I will create a chatroom or whoever logs on first can, called ARDS and it will be a public room. I can add people to my yahoo friend list if it makes it easier and invite you to the room as I see you log on.

If you want to join the yahoo group go to http://health.groups.yahoo.com/group/ards2/

The yahoo name I will be using is pnkraemer1980@yahoo.com

I have a lot of e-mail accounts and I normally was using cutensassybrat but never liked that name so am slowly trying to get rid of the account.
I want to add more interests to the info page, so maybe we can start a word association type thing. I also need to do a basic layout so we have some color, but want to use colors that will stand out so it isn't hard to read the actual journal. I haven't been feeling creative at all, so been putting some of this off. If anyone else wishes to do the layout, just tell me and I will give you mod control to do so. If not, I will get around to it sometime or other(or ask sweetly for one of my other friends to do it or find a community).

I hope everyone had a good Mothers Day weekend.
04 May 2005 @ 07:51 pm
hiya, my names amanda and my dad has had ARDS so i put a search in and found this community, just thought id say hi.